In accordance with the McCusker Foundation's values, we respect the individual worth and dignity of all people. The Foundation is committed to achieving best practice by adhering to the Privacy Act.
The Privacy Act 1988 (Cth) sets out the principles concerning the protection of your personal and health information, the National Privacy Principles ("NPPs") and the National Health and Medical Research Council (NHMRC) guidelines approved under Section 95A of the Privacy Act ("NHRMC Guidelines").
The Foundation's Privacy Policy applies to information about an individual's personal, health and other relevant information. This can include your name, date of birth, address, telephone number, e-mail address, bank or credit card details, health and disability status, services provided, and other personal or relevant information collected to undertake research or provide a health service.
The only time the Foundation collects, uses or discloses your personal, health and other relevant information is when it is necessary either to provide a health service to you, when it is allowed by law, or when you have given us your consent.
We collect this information to undertake research, provide health services and to meet the government reporting requirements.
The Foundation collects information in a number of ways, including:
Your personal and health information may be used in order to:
When the Foundation does share your information with a third party it is for the purpose of assisting us to undertake research or to provide a health service that is relevant to your needs.
Third parties to whom we would disclose your personal and health information include health professionals and organisations involved in your health care or associated with Alzheimer's disease research.
The Foundation will ask for your consent for the collection, use and disclosure of your information or for secondary use and disclosure of your information, where practicable, through the use of a consent form specific to the purpose intended.
The Foundation is committed to taking all reasonable steps to ensure that the personal information we collect, use and disclose is accurate and complete. However, the accuracy of that information depends to a large extent on the information you provide.
We would appreciate if you could:
In certain circumstances we are required to collect government identifiers such as tax file numbers, Medicare numbers, pension numbers or Veteran's Affairs numbers. The Foundation does not use or disclose this information other than when required or authorised by law.
You have the right to access your personal information held by the Foundation however your access may be subject to some exceptions imposed by law.
If you would like to have access, please let us know. For security reasons, you may be asked to put your request in writing.
When you contact the Foundation in relation to certain specific matters, such as your participation in a clinical research trial, it may be necessary to identify you. However, if you were making a general inquiry about our services, for instance, we offer you the opportunity to do this anonymously.
The Foundation may make changes to this Privacy Policy from time to time for any reason. We will publish those changes on our website.
We recommend that you review our Privacy Policy whenever you visit our website in order to obtain the most current statement of our Privacy Policy.
If you believe that the Foundation has not acted in accordance with the Privacy Act, you may lodge a complaint with the Executive Officer in person, by phone, fax, e-mail or in writing. We will act quickly and courteously to resolve any complaints you may make.
If you are not satisfied with the Foundation's internal complaints process you can refer your complaint to the Federal Privacy Commissioner by phoning 1300 363 992, or writing to:
Director of Complaints
McCUSKER
